


As I post this on Oct. 21, it would have been my father’s 89th birthday. He never wanted anything elaborate. Just his family and maybe mom’s Celebration Chicken and Apricot-Lemon cake for his birthday dinner. It’s been nearly15 years since he died January 8, 1994… of ALS… also known as Lou Gehrig’s Disease. He was a fighter. A man of courage with a gentle heart and welcoming smile… all the way to the end. He raised his children with a phrase he coined in the Navy… “Don’t wait. Anticipate.” It served him and us well.
I had moved home from Tulsa to help my mom and family care for my dad in 1991, but it took several years after he passed away to feel ready to help others dealing with ALS. In 2002, after we all were affected by 9/11, I felt compelled to do something to help my community and those with this devastating, degenerative fatal disease. Turns out the San Diego Chapter of the ALS Association was just being formed. I figured with my work at Channel 4, my relationship with the Padres and just my life experience caring for my father, I had something to offer. And after the first meeting, I was elected to the board and the work has been a labor of love… in honor of my dad who fought in three wars but couldn’t beat ALS. For me, and my family, volunteering for the chapter is part of my father’s legacy.
That brings me to Sunday October 19th. For the 7th year, bright and early Sunday morning, families, friends and supporters put on their walking shoes, grabbed a cup of coffee, and filled the grassy area at De Anza Cove for the Walk to Defeat ALS. For several months, our Board, the small but mighty staff and volunteers plan for this day. The logistics. The city permits. The registration. The t-shirt count for the 100 or so teams. But every year… at about 7:30… even when I know what to expect, I get a lump in my throat as I take the Mission Bay exit and see the parking lot filling up… the people gathering with their teams, their signs, their PALS… Persons with ALS.
About 1500 people turned out. About the same as last year, but the crowd seemed even more energized. More determined. More hopeful. Perhaps it’s because those of us in the ALS community are seeing that more people are paying attention to this disease. From the government to science to mainstream media and even Hollywood. We received great coverage in advance and on the day from various folks in the San Diego media – and we’re so grateful. I don’t want to leave anyone out, but CW San Diego 6, Fox 5, the Union-Tribune and my good friends at Double X Radio. And I produced a few stories through the Padres season and last week too on Channel 4. It’s nice to know spreading the word transcends broadcasting party lines.
As I emcee the event, my favorite part is reading all the team names… from ALS Busters… to ALS (still) Sucks… to Bobby’s Angels… and my team Wally’s Walkers. A-Z… each team represents people who know and love someone with or who had ALS. Or, they just want to help. Everyone has a story, and that day they share it with their old and new friends by just being there… or with the display of photos of those who have passed.
My mom (84 and with a new hip!) my brother and his son, my boss and her children, my sister and kids, and several special friends made it out for the day. And many others contributed as virtual walkers and I thank them all.
The clouds cleared and the sun broke through again for us this year. Despite what some are dealing with… with the disease… with the economy… whatever their worries… this was a day that we DEFEATED ALS… with smiles, a few tears, and hope. And the funds we raise allow us to keep serving others with ALS here in the Greater San Diego area.
If you missed the Walk and still want to contribute to the cause… the Walk season continues through the end of the year. Go to the website for info. www.alsasd.org
Whether you send a check or just spread the word… I hope hearing about this will inspire you to learn more about ALS. Or, maybe it will inspire you to work for a cause close to your heart. So… just do it. You’ll be glad you did.
Oh… and Happy Birthday Dad. You were such a gift to the world and to me.
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